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Friday, October 30, 2009

Old Lupus Symptoms... Problems of the Past

I started my new diet plan in January 2008, most symptoms were already gone by May 2009 but I have felt better day after day. Here are the changes as of October 2010.

I like to let people see how I have helped myself and also to let my doctors know my story)
Red Face(gone) extremely rare get a red face if I am in contact with certain allergic foods)
Acid Reflux (gone)
Numbness in my arms/hands (gone)
Double Vision/blurry vision (gone)
"unexplained" Grand Mal Seizure (2 years on Tegretol, then was weaned off) (gone)
Migraines(plus felt like a knife in my neck too with the migraine pain/eye aura too)(gone)
Sinus pain and pressure(but no dripping,discharge) (gone)
Dark spots in my field of vision(couldn't see there, like when someone takes a flash photo of you)(gone)
Dizziness( to the point I had to lay down and not move) (gone)
Bloody Noses with heavy clots at the end (gone)
Sores in my nose and mouth(occasionally still get them, sometimes usually before a cold)
Colds are VERY RARE one/two a year if that
Restless Leg Syndrome(gone)
"Panic attacks" may have been allergy related (read Theron Randolph book(s)) (gone)
Sometimes feel like I'm off balance "lean to the right"(still can walk, don't fall) (gone)
Lose my balance a lot(I stumble, but don't fall) (still sometimes/but happened all my life)
When driving if I looked down,to change radio station, and back up at the road felt dizzy, disoriented like my eyes would not focus quickly (gone)
Cervical pre-cancer cells(had a cervical conization to remove them)(gone and hope it stays that way)
Mass in breast(after many health changes and stepped up (every 4-6 months) mammos the doctor said the mass "resolved itself". ie: it went away (gone)

A doctor scared me in TX and said that he thought I had MS(Multiple Sclerosis) I was tested and found not to have that.

I have had many EEG's to check for seizure activity all were normal since the one seizure that I had. I had MRI's to check for weakened blood vessels all were normal (my mom had a blood vessel burst in her brain and she died from it, the doctor said it is worth checking me as it can be hereditary- GET YOUR B12 levels CHECKED!!! low B12 can cause your blood vessels to thin and eventually break- any doctor can check for B12 levels but you usually need to ask them to.)

Also had MRI's to check for MS, all normal

Discoid Lupus(sores on scalp and face from sun exposure)(during the summer I had an occasional pink skin on my nose that was sensitive but it would heal itself without becoming an open sore- now extremely rare to even get a pink spot!)

Joint pain all over my body(only if I eat something I am allergic to I don't do this on purpose sometimes companies have cross contamination or are labelled Gluten Free and they are not really...)

A new symptom is heart palpitations (2009/10) I had everything checked and can't find a reason for these but they are not very often. (Found out through a blood test that I have Hashimoto's Thyroiditis this could cause heart palpitations as well as mercury toxicity which I have also, found that out from a provocation urine test with DMSA not a regular blood test) Heart palpitations have gone!

As of June 2009 blood tests I still have Antiphospholipid Antibodies, Cardiolipin Antibodies, Double-stranded DNA, Positive ANA . I will get another blood test run in December to check and hopefully those Lupus markers will be gone... (In December 2009 my blood tests still show the same Lupus markers... : ( Need to go for another blood test soon December 2010)  

Most of my symptoms are long gone and I attribute it to taking care of myself and finding out my allergies and avoiding those foods and lessening stress(as much as possible) and my"Power Eating"(eating almost everyday for nutrition...OK I still eat my chocolate, and an occasional goody here or there)

4 comments:

  1. thanks for sharing your experiences! i'm trying to absorb some of the detail. i seem to have hashimoto's, i have all the symptoms and it's making my life crazy, though my antibodies are low.
    a couple of questions for you...
    what is a urine provocation test for mercury toxicity? and i'm really curious precisely what veggies and fruits you eat??
    thanks for your time!

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  2. p.s. my symptoms definitely got worse after booster vaccines, having a mercury amalgam filling drilled out, and other exposures.

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  3. Hi there, old post but still valid ;) ive noticed the same thing - as i avoid stuff that im hypersensitive to, my lupus symptoms decrease. Drastically. Its almost beyond belief sometimes.. Just last monday i deviated from my diet and suffered for almost a week, now its sunday and i finally feel normal again!!

    I did the food detective - test and it was pretty accurate. So that helped me a great deal.

    Ive tried some supplements in the past with no benefit. As research shows, fish oil seems to be number 1 for lupus and indeed it seems to be so - there are many benefits for lupies and it even help with sleep which ive had issues with lately...

    All the best xx and would love to hear how things have developed. Im very happy that there are people out there who get what this stuff is about. :)

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  4. For those people who are lupus sufferer and maybe reading this, I find it hard that people are still ignorant when it comes to LUPUS and have no idea what the illness is all about and still flippant about it even in the medical world.
    After my daughter collapsed at home she was seen by one of the Consultants in the Lupus Unit who performed more tests and confirmed that she was negative with the Anti-RO antibodies. when I was told this, as I was slowly thinking I was losing my marbles and this was all in my head.
    The Doctor prescribed a course of treatment but said that it would take about 8-9 months for the drugs to start working. I felt relieved to think that there was light at the end of the tunnel but still quite daunted by her having to cope feeling the way. After 2months of taken the medication the symptoms seemed to get worse, She had fevers, cold sweats, chest pains, constantly nauseous and she was finding it difficult to breathe. Her Doctor thought that the difficulty breathing may have been caused by one of the anti-inflammatory drugs and stopped them straight away.
    But Everything started to get easier from the point we came across Justin Herbal Medicine. When I first contacted Justin he told us that the drugs they'd used had aggravated the Lupus and caused it to flare more badly. The miraculous new treatment (Herbal Medicine) was for her to start the medicine sooner which was my thoughts, which of course was helpful.
    His medicine is very effective, she experienced no symptoms for the past 1year. If you/your relative have same problem, do not expose yourself to more danger, use a herbal remedy that is safe and effective. Contact him directly for more info. with this address: lancejustin54@gmail.com

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